ANYWHO...we
met with an oncologist this afternoon (who happens to have
significant experience with lung cancers in clinical trials, fancy that), and she had all the test results so
(drumroll/fanfare/etc.) here it is:
The Breaking Medical Update!
The Breaking Medical Update!
Diagnosis as of now: Diffuse Large B-Cell Lymphoma (DLBCL) and if you want to be even more specific, it seems like we're talking Primary Mediastinal DLBCL. Stage 2X (the "x" will get an identity once more tests are done).
STOP!!
RIGHT THIS MINUTE! I saw you, so get your finger off
the mouse or the track pad, stop highlighting that diagnosis, and don't you dare paste it into your Google search bar.
Not yet anyway. I'm holding the talking stick, so I get to go first before you go read about it anywhere else!
This is GREAT NEWS! No lie. John and I high-fived each other in the oncology office, that's how awesome this news is.
To break it down: Is it cancer? Yes. Is it fast growing and aggressive? Yes.
However, here's the beauty part: Because this is a cancer of the lymph system that has created a tumor in my lungs, rather than primary lung cancer, my outlook just changed from a cancer that was not curable, only treatable, with a really discouraging survival rate (gotta be honest, that was some grim reading right there) to something that is not only treatable, but curable in the 80% range!
So I just moved into a curable category! Sweet!
So here's the "it's all about perspective" moment: John and I realize that if you told us two weeks ago that I was going to receive a diagnosis of lymphoma soon, we would have been devastated. But getting a lymphoma diagnosis after going down the lung cancer path...well, I never would have thought that I'd be happy about a cancer diagnosis, but this in particular is cause for celebration!
The PET scan revealed cancer has not metastasized. It's localized in my lung. The tumor may be spooning with my heart right now, but it has not consummated the relationship! That's MORE GOOD NEWS!
Here's what the immediate plan is: Treatment is starting asap, even while more testing is being done: Need echocardiogram to make sure my heart is not suffering right now, need a bone marrow biopsy to see if lymphoma is there (that's the one thing you can't see on a PET scan), have to do some blood work, have to get a chemo port surgically implanted in my chest this week (kinda snuck that one in there, didn't I?), have to go to Chemo Training (who knew, except you folks who have done it), and they are thinking they will give me first round of chemo next week on Tuesday.
Chemo plan: 1 round every 21 days, 6 rounds if it's in the bone, and maybe less if it's not in the bone, followed by radiation (don't have any idea how long that would go). Surgery is off the table (I'm pretty happy about that even though it derails my plan of having the surgeon keep the tumor for me until I woke up in recovery so I could spit on it before they took it away--I think it's the Italian in me maybe).
I know that I am in for a bumpy ride here--no picnic for sure. But I have to say, within the entire range of emotions I've been going through, the most pronounced feeling I have is one of thankfulness. All I have been thinking is how horrible it must be for someone who does not have family, or fantastically supportive friends, or health insurance to go through this kind of a diagnosis. What about someone who has to worry about losing their job over missing time for chemo or radiation, or who doesn't have someone who can pick up the kids or you name it. I am fortunate, and thankful, and grateful. I'm kind of the luckiest person I know right now (okay, I COULD be just a LITTLE luckier and not have cancer, but you understand what I mean).
So, I'll be busy with all the rest of these tests, and I'll be putting together my Kick Cancer's Butt Chemo Playlist for my iPod, and we'll get to it!
Oh, I almost forgot...now you can Google it.
That really is Great news!! Your positive attitude is a definite part of what it takes to kick Cancers butt!!! Your awesome Andrea!! ( Love the spitting on the tumor...made me giggle) Love ya😊
ReplyDeleteDebbie
I can only fantasize that I would actually have been able to do that! :-D Crossing fingers and toes! All the juju from all of you helps so much!! xoxo
DeleteFantastic news! Well not the part of you actually having cancer! Love your positive attitude! Hugs!
ReplyDeleteJenn
DeleteHugs back atcha!! :-) xoxo
DeleteFirst and foremost I'm celebrating your awesome news. Secondly, I am SUPER impressed by your writing skills - you should have started a blog a long time ago girlfriend. Not sure what it is about you and the new world of social media, but you've got SKILLS! Hugs, kisses, more hugs - you and the fam are in my thoughts and PLUUUZ don't hesitate to let Danny and I know if we can do any little thing at all.! Love you.
ReplyDeleteYou may not be next door anymore, but I'm going to come get some hugs in person soon! Thank you for sending the good thoughts my way--we miss you and appreciate you!!! xoxo
DeleteOh Andrea, that is good news and I love, love, love that you are blogging! Your positive attitude and this blog will make all the difference in your well being as you go through this journey <3 I agree with Linda-your writing skills are the bomb!...But I knew that already! I am here, whatever you need....please call on me! I am close and ready to help <3 Lots of love to you and keep blogging!!! By the way....I pick Fuchsia! Kathy
ReplyDeleteOne vote for fuchsia...check! :-D Hope we can all get some smiles here and there to offset the whole plain old yuck of the situation! Knowing I can write and get things off my chest (like a tumor? oops, too soon?) will really help me out, so I'm glad you like it (so far...maybe not so much when it's all whiny...then the slap should happen)! xoxo
DeleteEXCELLENT news Andrea!! - considering the context of course. And thanks(!!) for this blog. I always enjoy your writings. Oh, and when you put your playlist together be sure to look out for those MUST dance songs when you're sitting in the chair getting your chemo. Wouldn't want to have a line yank out of you while you're jigging across the floor! ;-)
ReplyDeleteNow THAT was funny right there, I don't care who you are! It's going to be in my mind now every single time!! :-D xo
DeleteVery glad to hear about the 80% curability rate, yes! I followed your instructions and resisted the urge to Google the diagnosis. After reading your descriptions, I think I will stick to them. I am sure they are a much better read than the scientific stuff (sure, I know the science is interesting, but I want to read about the person). So, thank you for taking the time to write.
ReplyDeleteI love seeing you picture pop up! Miss you!! This is a medical education I didn't necessarily want to have, but I'll make the best of it!!
ReplyDeletexo
Love you!!
ReplyDeleteSending all kinds of love back to you--I appreciate you all so very much!! Wish we could be there for Thanksgiving, but I will be thinking of all of you and sending love and hugs!! xoxo
DeleteLove you!!
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteCaligal, who are you? Experiencing technical difficulties...I feel you!
DeleteThis comment has been removed by the author.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteThis comment has been removed by the author.
ReplyDelete