Monday, June 27, 2016

Shut Up and Eat Ice Cream!

     Last radiation treatment is done!  My cancer treatment is officially FINISHED!  Seems like we began all this a long time ago, and I'm thrilled to move forward as a FORMER cancer patient. 
     It was a little bittersweet to say goodbye to the radiation techs who have been so kind to me this past month.  What a lovely group of people--they took very good care of me and definitely made me feel like a person and not a patient.  So once again I feel very strange hoping never to see again some people that I've grown to like very much...maybe I'll run into one of them in the grocery store sometime, but I hope never to be seeing them in their professional capacity again.
     My family came with me to the final treatment and, to mark the occasion afterward, met with another friend for some celebratory ice cream.  I went all out--no cone for me, baby, bring on the sundae!  I then went home and slept off the ice cream hangover for several hours.  And now...well, now it's all about shaking off the radiation fatigue, getting back in shape (slowly but slowly), and trying to move forward without perpetual fear and anxiety of recurrence.  I just want to be my regular (weird?) self, not the cancer spaz I've been for the past 8 months.  Thanks to Team Andrea, I'm done. We made it!  Whoo hoo!
Vanilla ice cream, bananas, homemade almond toffee, whipped cream, and salted butter caramel sauce
in a waffle bowl.  Oh yeah!  You know you want some!
     I am in the process of rescheduling the follow-up with my hematology oncologist who will give me the plan for future appointments with her, blood work, and possible scans.  She'll be following me for the next 5 years, but we just need to work out the details of how often and what her preference for scanning is compared to my preference for scanning.  I'm a fan of scanning if the blood markers show hinky levels, or scanning if I am experiencing chronic symptoms that fit the description for lymphoma.  I'm not such a fan of routinely scanning every certain number of months no matter what, and the latest protocol doesn't support that approach either.  But we haven't had the opportunity to discuss it yet.  Anyway, knowing that I'll be seeing her on a regular basis will do a lot to stave off the general recurrence anxiety, I think.  It will just be strange to go from being followed by so many medical professionals so intently for so long to being "on my own" for the most part.  But I'm looking forward to getting used to it again. 
     I did see another ENT about my ear pain, and he checked me out and said that it seems like classic TMJ symptoms...however, I don't seem to have TMJ.  He said my teeth don't show evidence of grinding, but it is possible that I'm clenching my teeth at night.  He said that, having gone through all this cancer treatment (which his wife had gone through with breast cancer), it is not uncommon to manifest symptoms of stress after treatments are finished, because while you are going through treatment you just kind of strap in and hang on for the ride and don't necessarily have time to get all anxious about what's going on.  Now, I can't say that I feel particularly stressed...except about the ear pain...but this sounds like a chicken vs. egg discussion. 
     Anywho, he has recommended a protocol for me to try for a week to see if I experience any kind of improvement.  If I do get some relief, then his supposition is likely correct, and I should tag up with my dentist.  If I don't experience any measure of improvement in the pain, then I am to contact him again and we would do a scan of my neck.  He feels it would be unlikely that the cancer would be back given the time frame from the last clear PET scan and cannot feel anything in my neck from the outside, but he realizes that, if following this process doesn't change my symptoms, that it requires further investigation to determine what is going on.
     So really, I've got to ask:  Other doctor and ENT, was that so hard?  I mean, it's not as if this doctor did anything different in his examination.  But he actually communicated with me, gave me something to try, and then laid out a plan for a process of elimination.  Why did I have to go to three different doctors before one seemed interested in assigning a reason for the pain, giving a specific protocol for alleviating it, and presenting a plan of action if it didn't work?  Those three things don't seem to be so wildly outside the scope of a doctor's job description.  Anyway, enough of my venting for now.
     The routine for the week is this:  Apply heat three times a day, take a buttload (600mg) of an anti-inflammatory three times a day, and rest my jaw (meaning don't talk extensively, stay off the phone, play charades?), and eat a soft food diet for a week to minimize chewing. 
     So really, I think that boils down to him telling me to shut up and eat ice cream, don't you?  That is what he's really saying, isn't it?  Not talking is hard for me, I'll admit.  Anyone who knows me knows that getting me to shut my piehole is not easy, but ice cream?  Really?  Okay, twist my arm, it's doctor's orders, I GUESS I can eat ice cream if you insist!
     Oh, you say there are other soft foods that provide healthier, more well-rounded nutrition?  La la la la I can't hear you.
    

11 comments:

  1. How exciting and STRANGE it must feel to finally be finished treatment, you FORMER cancer patient you! Now shut your piehole and swallow your new medicine. ;-)

    Love and big, gigantic hugs.

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    1. You have been such a wonderful online support--I have loved reading your comments and feeling your healing vibe from halfway across the world! Hugs back atcha, woman!

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  2. New horizons now for you. Yay!! What a testimony you have of kind medical personnel and caregivers. I rejoice with you at the ending of this hard time and look forward to fresh, healthy days ahead! You up for coffee or lunch? Love, your birthday twin<3

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    1. Yes yes yes we must get together--but now we are so close to the free birthday extravaganza! Whoo hoo! Liberty Market, you and me honey!!

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  3. Congrats, good job, way to go, muy bien, tutto va bene, félicitations, l'chaim!

    May God be with you and bless you.
    May you see your children's children.
    May you be poor in misfortunes
    and rich in blessings.
    May you know nothing but happiness
    from this day forward.

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    1. Joe, it's been such an amazing thing to reconnect with you after all these years. I am sending your lovely words right back to you--continued positive rehabbing, less pain, ease of movement, and all good things moving forward!

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  4. CONGRATULATIONS ANDREA! Oddly, I your newer blog entries have not shown up when I've checked back to see what's going on with you until just now! I'm sorry to have missed all of your excitement! I'm so happy for you 😊.

    Soft foods...it does sound like a pointed edict to eat ice cream, mashed potatoes, macaroni and cheese, pasta in general, and I think Cinnabon is among the required soft foods! I utterly empathize with your frustration over having to see so many doctors before landing upon one who has decided to take a methodical approach to resolving the ear pain. I hope his first approach stops the pain...but to be safe you might want to hang on to the soft food diet for a bit....just to be extra super sure the first treatment works!

    Dana

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    1. Dana, I'm so happy I finally got to meet you! You have been amazing with your words of wisdom and wit, and I have so appreciated your support! I'm pretty much in awe of your amazing talents, btw. And your super rad hair--my jealousy is massive. I know I will see you soon!

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  5. Oh Andrea! That is great news!!! No, I am not talking about the ice cream although that is a nice perk! It has been a long road for you to be sure. One can only know by goig through it firsthand. You did it bravely and with spectacular wit. I have enjoyed following your blog. I hope I get to see you when I come home for a visit. We have some unfinished business to take care of. Only us two ninjas know what that mission entails. I am very proud of you and miss you tons. Love and thoughts!!!!

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    1. You'd BETTER hit me up when you are in town! Oh my gosh, Ninja Queen, you said it, we DO have unfinished business (damn cancer, hijacking plans)! Muah ha ha!

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  6. Oh Andrea! That is great news!!! No, I am not talking about the ice cream although that is a nice perk! It has been a long road for you to be sure. One can only know by goig through it firsthand. You did it bravely and with spectacular wit. I have enjoyed following your blog. I hope I get to see you when I come home for a visit. We have some unfinished business to take care of. Only us two ninjas know what that mission entails. I am very proud of you and miss you tons. Love and thoughts!!!!

    ReplyDelete